#SUCKIT Lupus – It Takes A Cyber Village

Let us not be content to wait and see what will happen,

but give us the determination to make the right things happen. – Horace Mann

I collect quotes finding inspiration in the words of others. But there are some bits of wisdom I don’t understand. “Everything happens for a reason” is one of them. Some things don’t make sense and never will. Sometimes there is no rhyme or reason.

Working as a writer and photographer for BlogHer, I met Erin Kotecki Vest, known to many as the Queen of Spain. Erin is a wife, mother, award-winning journalist and BlogHer’s Social Media Strategist.

In the last year, lupus has turned her life upside down. UP. SIDE. DOWN.

Sometimes there is no rhyme or reason.

I’m really lousy at seeing something I think is wrong and not being able to change it.  In the US, over one million people have lupus, and 16,000 new cases are diagnosed annually. And I am amazed at the strength of Erin, her husband, and children in facing this one day at a time. Never letting lupus win. Telling it to #SUCKIT even on the days it hurts most.

In times of difficulty, some bake. Others knit or meditate. As a child of the Lisa Frank sticker-loving eighties, I designed stickers and sent them off to be printed.

#SUCKITLupus is Erin’s twitter hashtag of choice. Words have power. These ones certainly do. I think it’s brilliant. As does their family dog, Nicky, who I think would have made the stickers himself if he had opposable thumbs.

Let’s make #SUCKITLupus a battle cry for Lupus and Autoimmune Disease Awareness. Let’s show Erin’s kids that a cyber village can, and will, come together in support of one another.

Help us fight lupus with a donation (whatever you can give) to the Lupus Foundation and I’ll send you a sticker. With a puppy on it. Who doesn’t want that?


First, click the link above to donate – all donations go directly to The Lupus Foundation.

Then, email me at alexandrawrote [at] gmail with your name and mailing address, and I’ll get your sticker to you.

And, in the great hashtag tradition, I’d love it if you’d tweet a pic of you and your #SUCKITLupus sticker to @alexandrawrote. 

One more thing, feel free to grab a button below for your site. Thanks to Lindsay for helping me code the buttons. #ittakesacybervillage xo a

DISCLAIMER: This is a project created by Alex Asher Sears with the permission of Erin Kotecki Vest, who thought I was kidding when I said I was going to make stickers. The Lupus Foundation did not not approve or sanction this project, but all donations made go directly to their organization with the hope of fighting this disease and retiring the #SUCKITLupus hashtag very, very soon.

Alexandra Wrote

<div align=”center”><a href=”http://www.alexandrawrote.com&#8221; title=”Alexandra Wrote”><img src=”https://alexandrawrote.files.wordpress.com/2011/11/suckit-lupus-blog-button-300.jpg&#8221; alt=”Alexandra Wrote” style=”border:none;” /></a></div>

Alexandra Wrote

<div align=”center”><a href=”http://www.alexandrawrote.com&#8221; title=”Alexandra Wrote”><img src=”https://alexandrawrote.files.wordpress.com/2011/11/suckit-lupus-blog-button-150.jpg&#8221; alt=”Alexandra Wrote” style=”border:none;” /></a></div>

(Nicky the Pup #SUCKITLupus stickers are 2×3.5 high gloss stickers designed by AlexandraWrote featuring the Sprik Space Collection. Please Link With Love if you’d like to share the images above.)


7 thoughts on “#SUCKIT Lupus – It Takes A Cyber Village

    1. alexandrawrote Post author

      Feel free to email me and I’d be happy to walk you through how to add the button. It should work if you’re using wordpress.com or wordpress.org. alexandrawrote at gmail dot com

    1. alexandrawrote Post author

      I’ll do my best! Email me alexandrawrote at gmail or on twitter @alexandrawrote – let’s see if we can fix this! And thank you for wanting to spread the #SUCKITLUPUS message. 🙂


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